So today Joel and I agreed would be about seeing family and friends. But we also agreed to make it a priority to spend time alone with our princess. We are struggling to parent and help her cope. We knew she needed time alone.
We are thankfully getting this. She is snuggling him in bed right now, and nearly asleep. I am thankful for a brief moment of normal.
Joel is doing well today, he is a little dizzy at times, mostly having difficulty with the relationship of where the ground is and where is feet should be. We suspect this is the tumor or seizure medication.
Pictures have been taken all morning, mostly by Evey our little photographer and we had an amazing thai lunch courtesy of a dear friend. I have toliet paper now, after a brief complaint online about how hard it is my friends are providing. hehe its amazing how the little things are reminding us that God is faithful and we can have the desires of our hearts.
So we wait, we smile and laugh. We thank God for family who surrounds us, but also understands and accepts our need to take time for just the three of us.
This is good.
We are anxious yes with surgery. It weighs on my mind constantly. Oh how I wish it were me and not him at times, as I hate to see my husband suffer so. But this is his battle... and now ours. His body has fought it beautifully and compensated so well. This is encouraging all around it is testiment to his strength, and the miracle of the human mind.
Thursday. oh Thursday I want to be done and over with the whole thing, but I also want to wait and freeze this moment. As they are both sound asleep, like nothing is wrong, or our world has changed.
Pray for us and praise God with us for these moments. The times that matter the most to us and our princess.
As for what do we need? Well your generosisty and compassion is AMAZING. Honestly we will we say what we need... but we just don't know what we need.... right now we have more than everything we need... bur when we do- as hard as it can be, know we will ask for help.
Evey adores her daddy, and in a beautiful moment today when she arrived she had planned chapstick and lotion for her "Ducky" She immediately rubbed lotion on his head and quietly but very determined said "he is going to be better." I can't help but relate it to the image of Joel being annointed by none other than his little girl- Who knows all so well that with GOD all things are possible.